CF patients cannot get too close to each other for fear of cross infection of the nasty bugs that they can harbouring in their lungs.
In this way CF is very isolating for both family members and the patient. You can often feel alone, and not know where to turn.
We are very lucky in that through our clinic and some mutual friends we have a great network and support base of other parents with children with CF. While we mostly connect via Facebook, we do also organise catch ups, we have all grown close friends very quickly as we share a common fight against CF. There is no greater bond then sharing a common enemy.
There are so many avenues, thanks to technology, that CF patients and family members can go to for advice, help and above all support.
We are forever grateful that we found this support and hope that others can have the same fortunes.
K
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K