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I have put a lot of thought and consideration into my words for this blog.
I pour out my heart and soul for you to read, learn and share about the ongoings in my families life.
I love that you like to share my words and blog so all I ask in return is that if you use my words, parts of my blog or entire posts to share via social media or anywhere that you give me a shout out and acknowledge that you are using MY words and maybe even include a link to the blog.
Thank you all for taking the time to read, learn and share my blog I really appreciate the compliments too and love knowing that I am reaching people near and far. I hope that you continue to enjoy my blog.

K

Wednesday, 12 February 2014

Letter D ( A to Z of CF 2014)

D is for discovery. 

There are always new discoveries being made in the medical world and things can change so quickly. Did you know that in the 1960's the life expectancy for CF was just 10! Now the average is 38. Of course every CF patient is different and may have more or less time then this but that is a massive improvement. 

There are many doctors working on many things to help CF patients and they are finding new medicines to combat symptoms and even suppress symptoms. 

Even now there are medicines that Cadel takes that just weren't available years ago and we have even seen new medicines introduced in our short time of knowing about CF. 

The biggest discovery of all is Kalydeco. Although this drug is only used for patients with a specific mutation they are working on more variations. For more information you can go here. 

http://www.kalydeco.com

So to the medical teams and researchers that continue to work hard at making these discoveries we applaud you and know that good karma will be bestowed on you and your families. 

We hope they make more discoveries so that one day CF can stand for Cure Found. 

K

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K